Fibro-Whaaaat?

Do you ever feel like no one really understand what it's like to have fibromyalgia? Even if you find someone who's interested to hear you out, do you feel like you're fumbling with your words to find a way to help the other person understand?

Well, I definitely do not claim to be the expert on this one, but here's a few links & ideas to try out. Perhaps, this will give you somewhere to start from:

A Day in the Life of Us
The spoon theory is written for lupus, so a fellow fibro-sufferer came up with the straw theory, but I think both are somewhat useful to explain life with a chronic illness:
Spoon Theory (Lupus): Christine Miserandino's Spoon Theory
Straw Theory (Fibro): Jayde Dow's Straw Theory 

Helping You & Others Understand Fibro
Understanding Fibromyalgia - Common Ways to Explain Your Illness
What is Fibromyalgia - MediBrain
Helpful Technical Articles - Lewis Institute Library
Living with Fibromyalgia - Arthritis Victoria

Helpful Ways to Combat Your Illness
10 Things to Stop Yourself from Doing
Coping with Fibromyalgia - FMT News

Helpful Books to Read
This is a tough one & so far I've only found one book that's been helpful & unbiased.
Living with Fibromyalgia - Christine Craiggs-Hinton

Suggestions on Doctors in Melbourne
Dr Daniel Lewis
The Fibro Clinic, Monash Medical Centre, Clayton

Support Groups
Fibromyalgia Melbourne Facebook Support Group - this is one I'm a part of & am finding really supportive
Fibromyalgia Peer Support Groups - Arthritis Victoria

Unfortunately, there is a lot of mis-information about Fibro and other chronic illnesses out there so don't believe everything you read. I've had a look at the links above & they appear to be legit.

I hope this post has been helpful. I'll try to keep updating this post with any new links I find.
Feel free to message me or comment on this post, if you've found other links, books or information that's been helpful to you. I'll be more than happy to include them in this blog to help others out too!